New Brain, Who Dis?

I am ready to share my story. Today (July 19, 2023) marks 3 weeks into my recovery from a craniotomy (brain surgery). I had a massive 3.87cm colloid brain cyst wreaking havoc in the center of my brain. This all came to be after going to my annual eye exam and not being able to read the first 3 letters. My Optometrist said “I’m going to trust my gut on this and write you a referral to a retina specialist”. Little did she know she saved my life at that moment. After failing a vision field test I was ordered an MRI on May 30th and that is when they found the brain cyst. Prior to this (about a year ago), my close friends and family noticed extreme behavior changes. I would ask the same question 3 times in a row and was unaware I was doing it which caused me to become angry with everyone. I dropped out of everything and had no interest in social interaction. Significant memory loss and trouble learning. I also slept most of the day and have no memory of any of the Dr. appointments or much of the months before. I lost the ability to cry and oddly enough, I never had headaches, the most common symptom. Right before surgery, I was plummeting into psychosis.  Prior to my diagnosis, I imagine how hard it was for my family to watch me deteriorate in front of them and not know why or how to help me. It is scary to think what would have happened if I didn’t have the eye exam. I am still trying to process everything and my recovery is going well (it started out really really rough). Writing music is one of the things I can do and I have written songs about my experience. This has changed me forever in a good way and I cannot wait to get back out there and live life to the absolute fullest. PLEASE get your screenings because you never know if it could save your life❤️

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