Results and new plan

Okay, so the results are in. Still waiting on an official radiology report to confirm but from what my neuro oncologist can see, the tumor has remained very small and inactive. This is GREAT! Huge exhale….. But of course there is always a caveat and now my oncologist thinks we should stop the targeted therapy and see what happens. The promising but very little research (due to the rareness of the tumor) shows people have been  going  a year or more without recurrence. This would allow my body to reset and recover from therapy. If it starts growing again, I still have the option to get back on BRAF MEK inhibitors (targeted therapy). However, this feels like skydiving and hoping my parachute opens and I’m absolutely terrified of heights!! Targeted therapy has been my safety net. I knew this day would come but I’ll be honest I’m scared. I’ll still be monitored closely - MRIs every 2 months but venturing in the medical unknown is wild. It’s definitely going to take a few days to sink in and I would stop January 6th when my 13th cycle of therapy ends. So much to think about yet I should stop thinking and trust fall but damn it’s a hard thing to do. 

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